adoption, Attachment Disorders

Too Young to Die


“I don’t want to die yet. I mean, I’m too young to be dead. There is still a lot of stuff I want to do.”

This is Carl’s pragmatic view on why he doesn’t want Mary coming home for visits. Why he doesn’t want to see her. He is “not ready to be dead yet.” Currently Mary is at a therapeutic program for a few months. It’s a short term program and we are working towards home visits. The longer she stays away from home, they say, the harder it will be for her to transition back.  There is a danger she will become “institutionalized.”

So here we sit, at dinner to celebrate our adoption anniversary. I’m sipping a glass of sparkling moscato. Luke is holding my hand discretely under the table. If the kids see they will surely tell us to “keep it PG!” Catlyn and Seth are tucking into their creamy alfredo pastas. We are all in a happy bubble of contentment. Except…except….Mary isn’t here. I can’t decide how I feel about it.

We visited Mary earlier in the day. She was wearing her adoption T-shirt, but hadn’t realized it was Adoption Anniversary day. She was in a good mood, hugging us and snuggling into my hair. Mary had just gotten glasses. She picked the brown ones so they would look like mine. A part of me is melting over this. 

 In all the years we had her, she never would complete a vision test. Doctor’s appointments tend to leave Mary shut-down, mute and staring at the floor. By the time the vision test came she would be entirely unresponsive, not even attempting to stand on the marked line. Don’t even get me started on the scoliosis test.

But when the nurse from the institution took her? She was fine. Mary said she “felt safe,” and that she “had been telling us” she needed glasses all along. Color me confused. It seems that her trauma is always triggered by, well, us. Being in a family, with a mom is hard. Being in an institution with strangers? That’s easy.

Her clinician says they have seen a lot of the drastic mood swings. They notice when Mary’s speech is so pressured that her words blend together and they don’t know what she is saying. She’s had to be restrained once so far, for attacking staff members who tried to break up a fight she was having with another girl. There is no way I could restrain her like that at home. I have a (possibly permanent) spinal injury, and my husband is going back to work full time. We can’t afford for him to just work the odd shift now and again. He can’t stay home all the time anymore in order to protect us from Mary’s violent rages.

What on earth will we do? After the murder planning, Carl is traumatized. So am I. Things are just starting to settle nicely. We are sleeping without the deadbolts locked on the doors. We haven’t had to secure the locks on the kitchen cabinet where the cutlery and glassware is. Things are quiet. Things are safe. I can allow myself to exhale.

But there is another side to this. The side where I see one of Mary’s little stuffed owls lying on the floor. I am gut-wrenchingly sick with missing her and simultaneously glad she isn’t here. I, like Carl, feel that I am too young to die. There is so much left to do.

 

**Names have been changed to protect the privacy of those involved.

Standard
adoption, Attachment

What Are We Fighting For?

img_1045

You can’t fight a war on all fronts. Or so I’m told. Lately we’ve been fighting that way, though. Everywhere I turn there is something else to confront, another battle to win.

On the one hand, I don’t want to die. I don’t want Carl to die. And I most certainly don’t want to see that haunted look on his face ever again, where he says, “She sounds just like Mom G. (Bio-mom)” Carl is referring to Mary. After her 8th acute psychiatric hospital stay since 2017 began, we installed cameras all over our house. With motion sensors and night vision. We find a dog to be trained as a PTSD service dog. We find a trainor. We spend thousands, thinking “this has to work!”

After the 8th hospitalization, Mary came home with a murder plan. She’d written it down with pictures and words while inpatient. Despite our best efforts to monitor and keep our cupboards locked, she found a weapon. And she planned to find it, planned to use it, all around her father’s work schedule. When Luke wouldn’t be here to protect us. She wasn’t out-of-control. She was casually discussing getting rid of the people who cause her the most emotions. Because love hurts Mary. She fears it. She hates it.

We need more help, we tell providers. We need more help we tell her insurance company. We need more help we tell the Department of Children and Families Voluntary Services program. We need more help we tell the state Office of the Child Advocate. (That last one actually worked.)

We can’t take her home yet, we say to the Emergency Department. She’s too dangerous. We have another child in the home.  Luke cannot work because he stays home to protect the family when she is there. Carl doesn’t sleep. We’ve been putting the service dog in with him at night. “Her violent rages are increasing,” we say. That isn’t the scariest part. The part that terrifies us is when she is smiling and happy, but you find her with a knife.

We fight to get her services. She will be going to a short-term residential treatment facility. (Thank you, child advocate!) The director tells us that they are trauma-informed. They’ve worked on cases of RAD before. I’ve heard that before from providers with little to no experience. “But,”he says, “we can’t cure your daughter. Once we’ve exhausted all of our treatment options, you have to agree to take her home.” Huh?

“She’s not a renovation project,” I find myself defending her, “She’s a traumatized little girl. And, no, you can’t keep her.” But it’s said over and over again. “In cases like this we have to insist that the family agree to take the child home. If not, you may be charged with child abandonment.” What?!

“Do you know how hard we fought to adopt her in the first place? Why is this even a conversation?” So I’m battling again. To show others the good inside of her. To show them that we love her. She’s not a “bad kid.” She’s not a mistake. She’s just very, very dangerous right now. But she’s our daughter, so hands-off!

We fight to show the intensity of our struggle at the same time we fight to show the validity of our family. We fight for services. We’ve had trauma focused, in-home, and partial hospitalization programs galore. She isn’t getting any better. She’s having more intense periods of mania. No more SSRIs. We are fighting about med changes.

In the end we are fighting for her not to return/but then to return home. “What outcome would you like?” says the Residential Center director.

“Less homicidal,” we say, “less dangerous.”

If we can be safe we can handle the rest. I think. At least, we’ve managed so far. It’s probably too much to hope the girl I knew will be coming back anytime soon.

And I’m fighting with Luke. We hardly ever argue. Sure, we get upset sometimes but after a decade together, we work it out. Luke has always been my safe place. It’s just that I can’t seem to conceptualize “safe” anymore. Instead , I’m irrationally fearful. I still want to sleep with the deadbolt on, even while Mary is away. I walk Carl across the road in an empty parking lot. I’m irritable. I don’t like it when she calls Luke from the hospital to calmly argue her points on all of the reasons I should die and that “It was only a little knife.” Why even take the phone calls? So Luke stops taking calls until we can meet with a clinician. They are just too disturbing. And he is too much of a good man to listen if it hurts me.

I feel as though I’m fighting for my life. All the time. I’m fighting for Carl’s life. The hospital thinks we should live apart. Carl and I should take up a separate residence. Luke should stay with Mary and keep her safe. “You’ll have to agree to take her home” they repeat. Why do they keep saying that? Now Luke is fighting.

“I live with my wife! I live with my family!” He is fighting for me. He is fighting for Carl. He loves us. He will not have us separated.

I am fighting to muddle my way through EMDR therapy. It’s supposed to help my stress levels. Help me to cope. “But if I’m still in the same stressful situation, can it really be helped?” I ask the therapist. She has no answer.

Instead she asks, “what would you like the outcome to be? How would you like to respond to these incidents?”

“How would you respond?” I ask, “If someone was planning your death?” The therapist just shakes her head. She doesn’t know. Nobody knows how to do this.

And I’m still fighting back pain. My injury has nothing to do with Mary. It happened at work. And yet, it has everything to do with Mary. She cannot be near me so Luke always has to be home when she is. For safety. The neurosurgeon tells me that I will “probably never be asymptomatic” because my “reaction is very rare.” We won’t know for months. Mary worries that I will die. It’s better if she can control when that happens. That way her grief can’t surprise her like it did with Mom G. So Luke has to fight to keep Mary away from me. We literally can never be alone together. So even if I’m not dying, I’m slipping away from her. This only feeds her fear.

At the same time I fight to help Mary, I’m fighting to regain my own balance. I’m fighting to remember that I’m a good mom, a good wife. Mary is still mad at that other mom. The first one. Her biological mother who hurt her so much. It’s just that, well, why do I always have to pay the price? Why does Carl? Because she assumes I love him more. Because I talk to him and this makes her panic. Therefore I should watch him get hurt. To pay for all the hurts Mom G doled out to Mary.

So I’m fighting. We are all fighting a war. But the question is, what are we really fighting for?

**Names have been changed to protect the privacy of those involved. 

Standard
adoption, mental illness

Mania and Matricide: It’s Not OK

cdadlock

Installing deadbolts

It’s not OK to hit me. It’s not OK to bite me. It’s not OK that I have a scar on my head from where you split it open with a high heeled shoe three years ago. It’s not OK that our son has to live at my parents house because he isn’t safe here. It’s not OK for you to plan on stabbing me and stabbing your brother. Not with a kitchen knife OR with a bottle opener.

It’s not OK that we’ve installed cameras with motion sensors and night vision in all the public areas of our house. It’s not OK that we have combination locks on the cabinets where we keep all the “sharps.” It’s not OK that we had to install deadbolts on the doors to our bedrooms. It’s not OK that the motion sensor alarm goes off to wake me up at 12:30 AM when you are wandering the house in search of a “stabbing weapon.”

It’s not OK that you told your therapist today that “Mom has to die!” and then threatened to kill yourself and your brother. You’ve been planning this ever since your last few hospitalizations. Last time they called you “depressed” and started a course of SSRI medications. Not OK!

When you came home your depression became a manic state. You became a child with pressured speech so fast that you stopped using consonants. You started your “hyper phase,” which means you never sleep. You laugh harder and harder until you are screaming and then breaking things. It is not OK that we had to “toss” your room and remove all of the hard furniture and sharp objects. It is not Ok that your service dog found a jack-o-lantern carving knife and gave it to us (well, actually it’s very OK with me that the service dog probably saved our lives.) Did you find it during a night of wandering around the house? Your hand was always holding things under your blankie, ever aware of the cameras. This is not OK.

dakota1

Dakota Blue, the service dog

You want to know what else is not OK? It’s not OK that the inpatient doctors refused to call your PHP, your psychiatrist, your trauma therapist, or your in-home service team. It’s not OK that they sent you home with an active murder plan and a spiraling state of mania that escalates into more grandiose and diabolical schemes. It is not OK that the state’s voluntary services program we applied for does not consider planning murder to be “clinically acute” enough for a short-term residential placement.

There are some other things that are not OK. It was NEVER ok for you to be neglected as a baby. It wasn’t OK that your pediatrician never reported to anyone that you were in the 12th percentile for weight and selectively mute. It is NOT ok that DCF had been involved with your bio family for 10 years before removing all of you. They were getting hotline calls before you were ever born! It is not OK that any attention you got from your bio mom often became abusive. It is not OK that you lived in terror and learned how to survive the ever-rotating bevy of strange men in your home.

It is NOT OK that I wasn’t able to be your mom in the beginning, when the bad things were happening. It’s not OK and it is not your fault.

Here is what is OK. It is OK that we knew about your mental health concerns when we adopted you. We chose you because you are more than a diagnostic label. You are an amazing girl. You are OUR girl. It is OK that you need to be somewhere safe right now until you stabilize. It is OK to need medication to help you do that. It is OK to grieve the first mother you ever had. God, I wish I could give some of that back to you. The good parts at least.

Our family is going to be OK. It isn’t easy getting there. Yes, we “chose” this life. But I still say we chose the best children. Nothing in life is easy. The best things are hard. I’ve seen parents with profoundly disabled children flourish. I’ve seen severely autistic children learn to read. So yes, we will be OK. It is OK to decide we are not going to try for a biological child. It is OK to stick with the family we have.

it’s OK that it takes an attachment-disordered child a long time to overcome the fear of love. It’s Ok that you inherited some of your bio mom’s mental health concerns. It’s OK because you will never struggle on your own the way she had to. It’s OK as long as we can all stay safe. And I pray that we can. We have done everything in our power. The rest is up to you, sweet girl. Don’t doubt yourself. Mental health can be a manageable illness. Love will always be there for you. No matter what.

ycameran

night vision camera

 

**Names have been changed to protect the privacy of those involved.

Standard
adoption, Attachment Disorders

If I Die Before I Wake

I pray the lord my soul to take. I wish these were just the words of a bedtime prayer. In my case, these words are real. If you’ve been following my blog, you know that our children have experienced an intense level of unspeakable trauma. Luke and I know this. We know how to parent therapeutically. We know how to get as many services as possible for our daughter. It doesn’t matter. She is a real danger to me and to her brother right now.

Our daughter has learned to survive. Her current diagnosis are PTSD-dissociative subtype and Reactive Attachment Disorder, with periods of psychosis. There is a lot of chatter about the RAD diagnosis, which I won’t get into here. Because I don’t care. Whether it be Developmental Trauma Disorder  (DTD, which never made it into the DSM-V) or RAD or PTSD or DMDD or any other diagnosis she’s had, it doesn’t matter. She still wants to kill me. A mother’s love is something she craves so badly that it hurts her. It twists her happy feelings into anger and possessiveness.

It all started the month we needed to buy her bras. She’s only 10 but here comes puberty. And so it began. In with the bras. Out with the effectiveness of her medication. She began hearing voices. SHe started to journal about my death. She began to tantrum and scream and fight invisible foes that only she could see. Oh, my dear little Mary, how I wish I could fight them for you.

Her love for me is desperate and all consuming. She needs me every second of every day. If I take a shower, she tantrums, if I leave the room, she explodes in a fit of rage. If I ask an innocuous question such as, “Do you like your new shorts?” She hears, “I hate you. I no longer love you. I am abandoning you.” When I turn to her brother for a momentary comment, she attacks. She will circle me and chase me with her little fists flying. She is trying to hit me in the spine. She will cripple me before allowing me to speak to Carl. So far, it hasn’t worked.

“If I can’t have you, ” she tells me, “no one can. I will stab us both.” In the night or early morning, she will loom over the bed, watching me sleep. “Mama?” she whispers, “Do you love me?” Of course I do. But I can never show her enough to quell her fear of losing me. She will make comments on my facial expressions. Why did my eyebrow twitch? Why did I move my top lip? Am I trying to get away? Have I stopped loving her?!The last 3 years of Trust Based Relational Intervention made all the difference, until now. TF-CBT made all the difference. Until now. Her anti-psychotic medication made all the difference. Until now.

The worst part is that it becomes unpredictable. We play mirroring games, and we snuggle, and I giver her all of my attention. Our time is spent connecting. As close as I stay to her, and as much love as I provide? I can never guess when a momentary glance at another person or thing will invoke her uncontrollable rage. We keep our knives and “sharps” locked up. You need the combination for a screwdriver in this house. Only, she finds other things. She shows me a bottle opener I’ve overlooked.

“You know this is sharp enough?” she casually quips, “I could stab you with this.”

The part that gets to me is how she discusses my murder without any observable emotion at all. Her brother tells me that earlier that she’s tried to figure out the combination for the lock on the knife cupboard. We only use plastic silverware in our house now.

As far as I can tell, nothing has changed. Nothing except the onset of puberty. Her intense violent rages happen every day. She injures herself most frequently.  She rips out her hair or punches herself in the face. She screams about murder. And blood. And the death of everyone on this planet who has ever hurt her. The bio-mother who abandoned her and hurt her. The mother she has now who sometimes needs to shower.

She is being released from the inpatient psychiatric hospital for the 5th or 6th time tomorrow. I’ve lost track. We have in-home services. We have an amazing trauma therapist who has worked with her for 3 years. We have a parent therapist for Luke and I. We have a partial hospitalization program set up that she has used more than I could even count over the last 3 years. There aren’t anymore services, unless the state agrees to help. Her medication no longer works. Today the inpatient hospital program told us they are releasing her tomorrow because there isn’t anything more they can do for her on the unit. Ever.

We’ve called a meeting with all of her providers for safety planning. We have PHP, Trauma team, And IICAPS (Intensive In-home Adolescent and Psychiatric Services) all concerned for safety is she is home. I miss my girl. I want her home. I’d just like to remain alive for her childhood. She hasn’t managed to truly hurt me yet, beyond a few arm and leg bruises. She hasn’t hurt Carl yet. It isn’t for lack of trying. It’s because Carl and I are too quick. We lock ourselves away and call for help.

Luke and I are doing the only things we can do. We are installing security cameras in all of the common areas of the house. Everywhere except for bedrooms and bathrooms. We need to objectively see what is happening. It’s entirely possible that we are unwittingly triggering her in some way. It is entirely true she doesn’t want anyone to see the things she does in the privacy of our home.

It is also highly probable that she’s spent a lot of time talking to “Josie” the “ghost” who orders my death (and possibly that of her brother.) The therapists in our home see her mood fluctuation and dangerous actions. So does her long term trauma therapist. But to most other clinicians? She is the sweetest most charming girl of all. She has always had to be this way, in order to survive her biological home. My Mary is a fighter. A survivor. For this, I am proud. I only wish she didn’t feel the driving need to survive being loved. 

Mary flipped out and began to yell at us and her inpatient therapist in the hospital today. She doesn’t like the cameras. She doesn’t want others to see her violence and destruction. She doesn’t want anyone to see her try to hurt Carl or try to attack me. When we don’t make progress with her on-call crisis team, we call 9-1-1. She will scream at the police and yell at the EMTs, but they never hear her plan my murder. Once we get to the psychiatric ward she is completely calm. Perhaps the video will help us to show what happens. After all, she only threatens or attacks those she loves the most. This kind of deep attachment-related trauma won’t be seen on a psychiatric ward. She simply does not require or crave deep relationships with revolving staff.

What she really needs from me is proof of my unconditional love. I try to give this as much as I can. Is it enough? It never is. What she is getting is 24/7 surveillance. Just in case. Because our daughter is trying to literally love me to death.

So if I never blog another post? Well then, I guess you’ll know why. 

 

yletter3

**Names have been changed to protect the privacy of those involved

Standard
adoption, PTSD

A Safe Place to Land

Everyone seems to know how to live this life better. This complex and confusing life of parenting children with severe developmental trauma. The life where your kids may have extreme behaviors, and/or mental health diagnosis. This life. This is a life that others are afraid to live. 

The part that most don’t understand is how this particular life could be one that I love. One that I have chosen. This life is fulfilling and joyful for me. I can be a hard person to buy material gifts for because I honestly just don’t care. I already have everything I could ever want.

Sometimes, though, I am scared. How will I continue to handle aggressive rages and outbursts? After almost 3 years of physical safety from my daughter it is hard to go back to that place. The place where her most common expression is one of anger. Her reactions to the slightest disappointment become violent outbursts. She is 10 now, and much taller and stronger than when she was barely 7.  I wonder how we got back to this place?! 

Loving my daughter is never the question. Sometimes, when I am in my deepest, darkest place, surviving her becomes the question. No matter how much love we put in or how many resources we find, the trauma continues to plague us all. This past week I’ve woken up several times in terror, covered in a cold sweat. I feel as though danger is imminent and I cannot catch my breathe. Since when do I have such a  visceral response to basic nightmares? Probably since Mary started raging again. 

There could never be an expiration on my love for her. There could never be an expiration on my commitment to her. Is it possible there could be an expiration on my ability to handle her violence? 

How did this happen? I naively thought we had conquered the worst parts. We still battle past traumas alongside our children. They still go to therapy. But I thought the days of her physical attacks were long gone. Perhaps that is why my reaction is one of panic. We left this place so far behind. Can we get through it all over again? 

I understand that professionals have a different perspective. In fact, they often lack perspective entirely. This life that I have chosen is actually quite rare. Not many “older children” get adopted from foster care. In essence, there is less chance of a doctor coming across a case like ours. The goal seems to always be to change their behavior. Change my behavior. To fix it. To fix her. How ridiculous.

I cannot fix what is already beautiful. All I can hope for is a bit of healing mixed with trust. I can love until forever. And I can hope for a safe place to land. For all of us. 

**Names have been changed to protect the privacy of those involved. 

Standard
adoption, mental illness

When It’s Not Enough: Adventures in Getting Help

Yhosp1

It’s not enough. I’m not enough. All of the work we have been doing for the last 3 years is not enough to help our Little Bit. 10-year-old Mary is starting puberty. She is also starting to unravel in terms of her mental health. She is back inpatient again at the psychiatric hospital. So, yes, I feel like I am not enough for our girl right now.

During her last meltdown she locked the door to her room and then jumped out of her window. Barefoot. Mary then got into a fight with our outside garbage bin (she won) while screaming at me. I couldn’t stop her. She ran a mile to a friend’s house in bare feet screaming that she needed the police because her mom was trying to kill her. Of course the police came with the ambulance. But they came to take her back to the psychiatric hospital.

We have used up all of the local resources. We have In-Home Intensive Child and Adolescent Psychiatric Services (IICAPS.) She’s been through trauma-focused cognitive behavioral therapy (TF-CBT,) Family Systems therapy, ongoing trauma work, Intensive Outpatient Treatment (IOP,) Partial Hospitalization Placement (PHP,) medication management, and many inpatient stays. Was that all one sentence? We’ve also read every book, checked all of the research we could find on developmental trauma, and parented therapeutically using the Trust Based Relational Intervention model (TBRI) No matter how many acronyms we throw around, she is still stuck in a downward spiral.

I am helpless to heal the deep wounds she carries from trauma. They will never be entirely healed, let’s be honest. But we want to get her to the point where she is functioning at home, as opposed to being in fight/flight mode most of the time. I think puberty has started to re-trigger some of the trauma that she had already come to terms with.

Our entire goal is to keep her safe. We want her safe at home, not inpatient. I did find a great model for attachment and trauma work done in the home. In-home services are the most effective for our daughter, but most programs are not specifically  trauma-focused. Even if they are, it is not for complex, developmental trauma. Thank goodness I found the Attachment, Regulation, Cooperation model (ARC ) through The Justice Resource Institute (JRI.)

JRI is dedicated to helping children and adolescents mental health. They are one of the leaders in the field of research on developmental, complex trauma. (Often referred to as C-PTSD. More letters, I know!) Unfortunately, they won’t take insurance. They won’t take cash. They only contract through the Department Of Children and Families (DCF.)

So we are asking begging for their help. We are in the process of applying for voluntary services. I’m not sure what will happen, but I’m hopeful. We are in the fight of our lives right now. It isn’t us against our child. It’s us fighting with our child against the trauma of her past. The question is not if we will continue the fight. The question is whether or not the state of Connecticut will join us.

So here I sit, typing away my jumble of letters and acronyms. Since when did the alphabet take over my life?! All that’s left to do is wait. And hope. Will you hope along with us?

ynote2

 

**Names have been changed to protect the privacy of those involved.

**If you want information about ARC or JRI you can go to www.JRI.org or www.traumacenter.org to learn more.

Standard
mental illness

Thank Hospital Vacation?

hosp

 

I must be the weirdest mom ever to think that my major spinal surgery seems like a vacation. Trust me, a little fusion surgery was nothing compared to the chaos Mary was experiencing at home.  I had some complications, and needed a cat scan. They found one of my vertebrae was actually fractured. I sobbed in pain while they gave me every narcotic pain killer intravenously they could. Finally strong muscle relaxants were administered and I calmed down. I clutch Luke the entire time while he whispered soothing things into my hair and stroked my arm. Vacation, right?

I had trouble breathing so I went to the ICU for a day. I had an oxygen tank sort of plugged into my nose in order to help me continue breathing. Vacation, right?

I am in constant, excruciating pain. However, my meals are brought to me, and my daughter Mary isn’t attacking me here. There is significantly less screaming here than Mary is doing at home. I feel deep pain at the incision sight where the doctors cut so deeply into my spine. It doesn’t matter.  I’m safe and safe feels good. Yes, even with the deep and unrelenting pain, this might be a vacation.

Everyone smiles at me and offers to bring me things at the hospital. They help me use my walker (really hard for me to walk right now.) I get to order my meals from a menu. No one yells at me. No one is throwing things. And I haven’t seen one tantrum since I’ve been here. Not even from the patients! This MUST be some form of vacation.

The truth is I’m doing very poorly. The Physical Therapist came to see me and opened with,”I’m not trying to be mean” before helping me to a chair. That is where she wanted me to try and sit for an hour. I couldn’t do it.

The pain was so unbearable that I clutched the chair arm and  sobbed for a half an hour straight. I had an ice pack. I tried the PTSD calming strategies we use with Mary. I grounded myself by what I could see and hear. I sipped water and counted my breaths, trying to breathe in and out slowly. I tapped my fingers in a method I learned at a trauma workshop. I tried to picture the happy place I keep in my mind. I counted to 100 and back. I asked for a stress ball, in between giant, hiccuping sobs. There was mucus everywhere. Tears soaked my hospital gown I just couldn’t stop sobbing. .

“Stop crying,” they kept telling me, “You’ll hyperventilate.” 

“I’m trying!” I gasped, “I’m using my coping skills!”

Did it work? No. They ended up peeling me out of the chair after 30 hysterical minutes. I even had them close the sliding doors so I couldn’t disturb the other her ICU patients. I wanted to be so strong and finish the full hour sitting in a chair. I wanted to stop my sobbing hyperventilation and soldier through. I wanted to be in charge of my own body! But I was basically locked into an adult form of out-of-control behavior. I didn’t yell or throw things. I was very polite when I could get a word out. “Please,” I’d say, “I’m trying!”

I just couldn’t do it. They put me back in bed and administered strong pain medication and  more ice packs. My doctor was baffled. She didn’t know why it hurt so much but she was very concerned that I was adamant to keep going.

My doctor and the PT were concerned with my pain. I wasn’t. Here’s why: my pain is physical. When Mary sobs uncontrollably, tantrums, or panics, her pain is emotional. We can’t administer more pain medication and send her back to bed.

Her trauma is as real as my surgery. Her emotional pain is as real as my physical pain. I’ve made it home now and all I can do is be grateful. That was the absolute worst vacation ever.

**Names have been changed to protect the privacy of those involved.

Standard